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haPPIE Research Group

 Ethical involvement. Lived experience. Real impact.

The haPPIE Research Group is a supported community of people who use lived experience to shape research, services, and innovation in meaningful and ethical ways.

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We exist to ensure that the voices of women, families, and communities are not only heard, but respected, protected, and acted on. Too often, research and service design happens without the people most affected. We work to change that.

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haPPIE Research Group is part of The Essential Baby Company in the Community CIC and sits alongside haPPIE Academy.

 

Together, they create a pathway from learning and community action into structured involvement that improves care and reduces inequality.

 Creating an account does not commit you to any activity.

It allows you to access information and decide what feels right for you.

What we do

The haPPIE Research Group supports ethical patient and public involvement and engagement across health, care, and innovation.

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This includes involvement in:

  • research studies and evaluations

  • service design and improvement work

  • digital health and innovation projects

  • community insight and learning programmes
     

Our role is to bridge the gap between communities and systems, ensuring involvement is meaningful, safe, and leads to real change.

How involvement works

Involvement through the haPPIE Research Group is always structured and supported.

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Opportunities may include:

  • attending online or in-person focus groups

  • taking part in individual interviews to share lived experience

  • reviewing information, resources, or tools

  • advising on how services or research are designed and delivered

  • supporting evaluation and learning activities
     

All opportunities are clearly explained in advance, including what is involved, how long it will take, and what support is available.

Edit this paragraph to highlight a specific service or feature you offer. Click "Edit Text" to begin editing the content and make it your own.

Edit this paragraph to highlight a specific service or feature you offer. Click "Edit Text" to begin editing the content and make it your own.

Edit this paragraph to highlight a specific service or feature you offer. Click "Edit Text" to begin editing the content and make it your own.

Edit this paragraph to highlight a specific service or feature you offer. Click "Edit Text" to begin editing the content and make it your own.

How we work safely and ethically

 Care sits at the centre of everything we do.

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The haPPIE Research Group operates within clear governance, safeguarding, and ethical frameworks.

 

This includes:

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  • clear boundaries around roles and expectations

  • informed consent for all involvement

  • confidentiality and data protection

  • support before, during, and after involvement

  • the right to step back at any time
     

No one is expected to share more than they feel comfortable with.

Involvement should never cause harm.

 How this connects to haPPIE Academy

 haPPIE Academy focuses on learning, community projects, and supported volunteering.

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The haPPIE Research Group builds on this foundation by offering structured involvement in research, evaluation, and service design for those who choose to take that step.

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You do not need to be part of the Research Group to be a valued member of haPPIE Academy.

 

Progression is optional and led by you.

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